Advanced Practice Registered Nurses / Physician Assistants
4 Year Degree
The Mesothelioma Applied Research Foundation (Meso Foundation) is the nonprofit collaboration of patients and families, physicians, advocates, and researchers dedicated to eradicating the life-ending and vicious effects of mesothelioma. From our office in Washington, DC, the Foundation’s staff works nationally and globally to accomplish this mission. We offer medical information, hope and support to mesothelioma patients and families, fund the highest quality and most promising research projects from around the world, raise awareness of the disease, and advocate that the public and private sectors partner in the effort to cure it.
The Director of Community and Patient Support serves as the Meso Foundation’s liaison between the mesothelioma community for all medically related issues. The Director of Community and Patient Support will report to the Foundation’s Chief Executive Officer. In this role, the Director of Community and Patient Support will speak with patients and family members and answer questions about mesothelioma, its symptoms and treatments. The Director of Community and Patient Support will oversee the Foundation’s research grant review process and will be working with the Foundation’s Scientific Advisory Board (SAB) and members of the medical community on any initiatives that will help the mission of the Foundation.
ESSENTIAL DUTIES AND RESPONSIBILITIES
1. Oversee the Patient Education Program
Provide one-on-one contact with patients, families, caregivers and new contacts
Provide patients, families and caregivers with useful, accurate, and specific information on availability of mesothelioma specialists, treatments, and clinical trials
Oversee development of medical/treatment resource library – printed materials and web resources, especially including lists of clinical trials, treatments and meso specialists
Work with Program Assistant to help raise awareness and educate patients on the Patient Travel Grant Program; Work with Program Assistant to effectively track and report the program, and fully engage participants in the Foundation’s other programs and services
Provide feedback on ongoing development, maintenance and quality control of database as it pertains to accurate, comprehensive entry of patient/family and volunteer data
Expand our referral list by identifying medical experts who can assist in all aspects of mesothelioma care. This list includes: medical oncologists, pain specialists, radiation oncologists, bereavement counselors, psychiatrists/psychologists and social workers.
2. Oversee the Research Grant Program
Track all grants in grants database and look for ways to improve our grant program
Ensure that grants program is funding the top grants each year
Work with SAB to create a clinical trials consortium
Monitor the quarterly reports in order to advise CEO and the Board of Directors on conceptual design and quality control of grants program
3. Communications and Program Support:
Communicate regularly – both individually and as a group – with meso doctors and researchers, especially those who have received grant funding or are applying for funding
Through such communications and through medical literature and relevant medical conferences, stay up to date, keep the website and/or resource library up to date, and keep other Foundation staff, especially CEO, up to date on what is happening in meso science and treatment
Use this information to advise patients in the Patient Education Program, develop material for the newsletter and the website, and help organize agenda for symposium and meetings
Look for ways to move our mission forward by working with the medical community
Assist with the agendas of regional conferences and the International Symposium on Malignant Mesothelioma
4. Building Our Network
Cultivate the personal relationships with patients, families and caregivers to build the meso community and attract major gifts and volunteers
Work with development staff to write grants for patient education and support, as well as grants that encompass community studies
Identify potential donors and prepare them for contact with major gifts person
Facilitate the transition from patient/caregiver to volunteer and advocate
Cultivate doctors, nurses and social workers at major meso centers, especially those affiliated with the Foundation through membership on Boards, receipt of grant funding, or presentation at Symposium, to encourage their patients to contact us.
Recruit social workers and volunteers to lead support groups and/or information seminars with a consistent approved contextual message beginning on East Coast, then to other major cities w/ meso populations nationwide. Initial target: social workers and nurses working with meso board, scientific advisory committee members and our website designated medical experts.
Speak to relevant groups, i.e. ONS, nursing groups, and oncology social workers, to raise awareness of meso and of the Foundation
Assist with developing “marketing” literature to distribute to front-line doctors, and at-risk populations (unions, veterans’ groups, exposed communities like Iron Range citizens), to raise awareness of meso and of the Foundation
Help to represent the Foundation for advocacy purposes in Washington, D.C. when a research perspective is needed.
Advise Foundation on the community’s needs and how we can better reach them, what new program components or revisions are needed, especially from medical and patient support perspective
Provide input on content of newsletter, website, symposium, solicitations, etc.
Assist with general fundraising activities as appropriate for situation
6. Other Tasks as Needed
The Meso Foundation is looking to hire a Director of Community and Patient Support who has the following experience and skills, at a minimum:
At least 6-10 years of working in a medical setting with oncology work preferred
Must be licensed in a given medical profession
Excellent ability to connect and communicate with patients
Ability to learn and process medical research and help others understand medical information
Ability to develop and maintain relationships across all levels of the organization with a broad spectrum of stakeholders
Knowledge of research in mesothelioma a plus
Must be a team player and able to work with others
Superior written and verbal communication
Bachelors degree or higher degree
Ability to travel, as needed
Must be able to walk up and down flights of stairs and lift up to 20 pounds
Additional Salary Information: Competitive Salary; Great Benefits
The Mesothelioma Applied Research Foundation (Meso Foundation) is the only nonprofit, charity organization dedicated to ending mesothelioma and the suffering caused by it, by funding research, providing education and support for patients and their families, and by advocating for federal funding of mesothelioma research.