The Jason Carter Clinical Trials Program (JCCTP) is a comprehensive approach to addressing barriers and challenges that hinder patient access and understanding regarding clinical trial participation. This program will incorporate existing resources on clinical trials as well as enhanced and new resources to increase awareness, understanding and access. The program will provide easy-to-understand clinical trial information as well as provide online tools to help patients make informed decisions and find appropriate trials of treatments for their particular disease. The JCCTP will identify and reduce information barriers, provide tailored clinical trial summaries, and serve as a resource for patients and investigators.
This position will work to identify and reduce barriers to clinical trial participation by providing education to patients, families and health professionals; establishes and manages a centralized system (clearing house/registry) to disseminate information on clinical trials available through centers in the United States. This position is also responsible for collecting, analyzing, and distributing clinical trial information as appropriate, serve as a liaison with transplant centers and partners to disseminate information, educate physicians and healthcare professionals, and provide one-to-one support to patients and their families. Patients who could potentially benefit from clinical trials and their families will be empowered to locate, access and understand information that is needed to make informed treatment decisions. This position supports the achievement of department goals through performance of job accountabilities listed below.
Bachelor’s degree in nursing, master’s degree preferred. Current RN licensure required. Clinical Research Professional certification preferred.
Three years of experience working directly with patients to assess eligibility for clinical trials participation as well as providing education and navigation. Prior clinical experience in oncology, hematology and/or hematopoietic cell transplant as well as clinical trial education preferred.
Demonstrated ability in learning methods and teaching techniques for a lay audience, including innovative delivery of education through online, print, live mediums, strong professional communication, writing and organizational skills; principles of plain language
Ability to communicate with and support patients and caregivers who are experiencing stress and trauma as a result of chronic and life-threatening. Excellent oral, phone based and written communication skills; strong organizational skills; computer literate; advanced interpersonal and problem-solving, mediation and customer service skills. Ability to appropriately interact with a variety of audiences including patients, family members, physicians and other healthcare professionals. Ability to plan and coordinate projects and exhibits.
Occasional travel to participate in site visits and attend conferences as needed.
YOUR CAREER CAN MAKE A LIFE-SAVING DIFFERENCE
The National Marrow Donor Program® is a leader in the field of cellular transplantation. We partner with a global network of hospitals, blood centers, cord blood banks, and laboratories to facilitate bone marrow transplants for patients with life-threatening illnesses such as leukemia and lymphoma. The NMDP also operates the Be The Match™ Registry, co...nducts vital research to improve survival and quality of life, and provides education and support services to health care professionals and patients. Our staff helps deliver this cutting-edge science, service and support to patients and their families.